EHE Foundation

EHE Giving Tuesday 2019 Totals

Giving Tuesday 2019 WrapUp

By EHE Foundation / December 27, 2019 / Comments Off on Giving Tuesday 2019 WrapUp

We are THRILLED to announce that we surpassed our #GivingTuesday donations from last year! We are excited to share the total on Tuesday, December 10th. We are beyond GRATEFUL! THANK YOU to our many compassionate supporters for giving hope to those suffering from EHE. It is inspiring to know that our grassroots fundraising will continue to advance […]

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Harrison Pluta

Harrison Pluta

By EHE Foundation / December 3, 2019 / Comments Off on Harrison Pluta

I am Missy and I lost my son, Harrison, to EHE. Harrison grew up in Portage, Michigan. He was a good student and young man of faith, who enjoyed being around friends and family. He participated in cross country and track in high school and continued his love of running until his cancer diagnosis. His […]

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Amanda Holland

Amanda Holland

By EHE Foundation / December 2, 2019 / Comments Off on Amanda Holland

I’m Amanda Holland and I live in Anchorage, Alaska. My husband Logan and I have been married since 2011. When we were married I was blessed to become a mom to his son, Logan M. (18 years old), and we have two beautiful little girls: Madilyn (5) and Hope (6 months). I’m also a dog […]

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Michael Proctor

Michael Proctor

By EHE Foundation / November 27, 2019 / Comments Off on Michael Proctor

I am Michael Proctor of Fayetteville, NC. I am a former Army Medic that was diagnosed with EHE while serving on active duty in Afghanistan. I have an 8 year old daughter, who is the light of my life. I also enjoy fishing.In early 2010, I was deployed to Afghanistan with Chosen Company of 2nd […]

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EHE Teleconference

EHE Research Update Teleconference – Nov 2nd

By EHE Foundation / October 29, 2019 / Comments Off on EHE Research Update Teleconference – Nov 2nd

Please join us for our annual “EHE Research Update” teleconference on Saturday, November 2, 2019 from 4:00 pm to 5:30 pm Eastern Standard Time (US). Jane Gutkovich, The EHE Foundation’s Director of Research, will be going over these main topics: What is EHE? Or rather EHEs? Why we all are so different? What have we […]

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International Sarcoma Kindred Study

International Sarcoma Kindred Study (ISKS)

By EHE Foundation / October 11, 2019 / Comments Off on International Sarcoma Kindred Study (ISKS)

What is ISKS? ISKS is . afree to participate global genetic, biological, epidemiological, clinical resource developed to understand the genetic basis of sarcoma in a population. ISKS has created a world first, one of a kind, database that is accessed by doctors, researchers and scientists across the globe. ISKS was developed by Australian EHE Medical […]

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