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Patient Services
What is EHE?
EHE Management
Newly Diagnosed
Provider Directory
EHE in Children
Patient Registry
Tissue Donation
Additional Resources
Join our Community
EHE 360 Global Patient Conference
Contact Patient Services
Research
Research Projects & Initiatives
EHE Biobank
Patient Registry
Clinical Trials
Research Grants Program
EHE Library
Get Involved
Donate Now!
EHE 360 Connect
Community Connections
EHE 360 Global Patient Conference
2024 EHE Fun Run & Walk
Fundraising & Events
Fundraising Tools
Circle of Friends
About Us
Our Impact
Our Story & Mission
Board of Directors
Advisory Board
Meet Our Team
Foundation Partners
Financial Information
Blog & News
Media & Press
Stories of EHE
Just Live
Contact
DONATE NOW
Search
Search
Patient Services
What is EHE?
EHE Management
Newly Diagnosed
Provider Directory
EHE in Children
Patient Registry
Tissue Donation
Additional Resources
Join our Community
EHE 360 Global Patient Conference
Contact Patient Services
Research
Research Projects & Initiatives
EHE Biobank
Patient Registry
Clinical Trials
Research Grants Program
EHE Library
Get Involved
Donate Now!
EHE 360 Connect
Community Connections
EHE 360 Global Patient Conference
2024 EHE Fun Run & Walk
Fundraising & Events
Fundraising Tools
Circle of Friends
About Us
Our Impact
Our Story & Mission
Board of Directors
Advisory Board
Meet Our Team
Foundation Partners
Financial Information
Blog & News
Media & Press
Stories of EHE
Just Live
Contact
DONATE NOW
Latest Research
EHE patients’ voices inform paper on sirolimus for the treatment of EHE.
March 15, 2024
Science Saturday: Patient-Powered EHE Research
March 13, 2024
2023 EHE Foundation Research Grant Awards Announcement
December 12, 2023
Spotlight on Young Investigator Nicholas Scalora, Advancing the Science Behind EHE
November 14, 2023
Highlights from CTOS 2023
November 8, 2023
EHE Global Research Convened in Milan, Italy
October 2, 2023
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