Maggie Cameron

I was first diagnosed with fibrosarcoma in April of 2008 after severe pain in my brachial plexus, right side. At the time, I was 48 years old and teaching middle school. I had just finished a master’s degree a few years prior to my diagnosis and planned to teach until I was at least 62. […]

Who or what inspires you most to keep fighting for a cure, and why? “I fight for my family. My husband and my four-year-old daughter. She is too young to understand what cancer is and I need her to know that her mother is going to fight to be here for when she graduates from […]

Makenna is 14 years old and was diagnosed with EHE in June 2022. Makenna shared about her EHE diagnosis, “It has changed my life by showing me that I should be grateful for the things I have in my life. Examples of those would be my family, my friends, just being able to take a […]

“The most difficult part of being diagnosed with EHE and living with it is how much it has changed me and my family. I have been so sick, I have lost so much weight, I barely have any energy, and I experience pain every day. My EHE is only in my liver. My family and […]

Who or what inspires you most to keep fighting for a cure, and why? “My family, friends and support system. As well as all other patients who have been diagnosed with EHE and all those around them. Since EHE is a different path for each patient, and we still don’t understand how it happens/what causes […]