We need your Our tissue donation program makes it easy and FREE!

Thank you for joining us at EHE 360!


The first international, patient-led, scientific meeting organized to gain consensus on the state of EHE research and clinical management of patients. Session I (State of EHE Research) was on Friday, January 15 & Session II (Clinical Management of EHE) on Friday, January 22.

Our goal? To create a global, patient-led research network strategically focused on shared research priorities ultimately leading to treatments and cure for EHE! Note: presentations are mostly targeted to the researchers and clinicians interested in EHE research and patient management, but we welcome the global EHE community to participate and gain a "front row seat" at this groundbreaking event!

The entire conference was recorded and now available to view, but you must be registered to receive access to the EHE 360 conference site and recordings. 

Please register here to receive a confirmation email with secure login instructions to access the conference site and view the Session recordings. If you have any questions on EHE 360, please contact Medha at mdeorassutliff@fightehe.org.

Thank you to the Chan Zuckerberg Initiative, Rare As One Project for their generous support of EHE 360!  

EHE 360 Agenda & Speaker Lineup

2021 EHE 360

Session I: Friday, January 15
Scientific Presentations
Conference begins at 10:00 a.m.
and ends at 3:00 p.m. Eastern Time Zone
Short BREAK at approximately 12:30 p.m. ET

Jenni Kovach
President, The EHE Foundation
Welcome & Kick-off to Session I 

William Tap, M.D.
Memorial Sloan Kettering Cancer Center
Overview of the EHE Center of Expertise at MSKCC

Cristina Antonescu, M.D.
Memorial Sloan Kettering Cancer Center
Pathologic and Molecular EHE subsets - An update

Professor Valerie Kouskoff
The University of Manchester, UK
An in vitro model to study the consequences of TAZ-CAMTA1 expression in primary endothelial cells

John Lamar, Ph.D.
Albany Medical College
Identification of negative regulators of the TAZ-CAMTA1 fusion protein

James Chen, M.D. 
The James, OSU Comprehensive Cancer Center
Exploring the Genomic Landscape of Epithelioid Hemangioendothelioma

Nathan D. Seligson, Pharm.D. (co-present)
University of Florida
Exploring the Genomic Landscape of Epithelioid Hemangioendothelioma

BREAK - VIDEO Presentation by EHE Patient Advocates

Hugh Leonard
EHE Rare Cancer Charity, UK
Spotlight on EHE Group

Patty Cogswell
Spotlight on EHE Biobank

Brian Rubin, M.D. Ph.D
Cleveland Clinic
Lessons learned from a genetically engineered mouse model of epithelioid hemangioendothelioma

Jordan Driskill
UTSW Medical Center
TAZ(WWTR1)-CAMTA1 initiates TEAD-dependent angiogenic reprogramming in endothelial cells to drive EHE

Albiruni Razak, M.D.
Princess Margaret Cancer Center, Canada
PLATO Study - Trial in Progress

Professor David Thomas
Garvan Institute of Medical Research, Australia
Genomics, Precision Oncology & EHE

Session II: Friday, January 22
Clinical Management of EHE
Conference begins at 10:00 a.m.
and ends approx. 3:00 p.m. Eastern Time Zone
Short BREAK at approximately 12:30 p.m. ET

Jenni Kovach
President, The EHE Foundation
Welcome & Kick-off to Session II

Scott Okuno, M.D.
Mayo Clinic
Overview of EHE

Silvia Stacchiotti, M.D.
Fondazione IRCCS Istituto Nazionale Tumori, Italy
Update from Milan: Overview of ESMO Workshop on Vascular Sarcoma & What’s Next

Professor Robin Jones
The Royal Marsden, UK
The Role of Local Therapy in Multi-focal Epithelioid Hemangioendothelioma.

Charles Rosen, M.D.
Mayo Clinic
The Role of Liver Transplantation in the Clinical Management of EHE

Govindarajan Narayanan, M.D.
Miami Cancer Institute
IRE in the Management of EHE in the Liver

BREAK - VIDEO presentation by EHE Patient Advocates

Lisa De Young
The EHE Foundation
Spotlight on EHE Patient Community

Marije Weidema
Radboud University Medical Center, Netherlands
Differences in quality of life between EHE patients, a global and online patient-initiated study

Scott Schuetze, M.D., Ph.D.
Rogel Cancer Center, University of Michigan
Preliminary Observations From a Phase 2 Trial of Trametinib in Patients With EHE

Denise Adams, M.D.
Children’s Hospital of Philadelphia
Pediatric EHE: Children are not "little" adults or are they?

Breelyn Wilky, M.D.
University of Colorado
Systemic treatment for EHE: Customizing therapies for individual patient

Representing The EHE Foundation:
Jenni Kovach
David Casimir