The EHE Foundation Board of Directors

Julie Wahl, President

Julie Wahl is a mom, military wife, and EHE advocate. Julie has a BA in Accounting and is currently working full time with The EHE Foundation. Julie is a veteran of the U.S. Army and her husband, Trevor, just retired from the Army after 24 years of service. They are both natives of Upper Michigan, but their family has been given the opportunity to live all over the world thanks to their military lifestyle. They have two daughters; Delaney is 16 and Olivia is 14. Her family enjoys boating, fishing, soccer, and the Green Bay Packers.

Julie’s daughter, Delaney, was diagnosed with EHE on April 22, 2014. Julie spent the first couple months after diagnosis searching the internet for answers. She was scared, confused, and angry. Tired of feeling helpless, she decided to be proactive and start fighting EHE head on. Her family started fundraising and created “Team Laney”.  Julie hopes The EHE Foundation will be instrumental in helping find a treatment for EHE while supporting EHE patients, family, and friends.

You can contact Julie at juliewahl@fightehe.org

For more information about Team Laney, go to our Facebook page, Team Laney Cure EHE

Jane Gutkovich, Vice President & Director of Research

Jane Gutkovich and FamilyJane was born in the country of Belarus. She graduated from Polytechnic College with a degree in Civil Engineering and worked as an engineer for 9 years.  She came to America in 1991 with her husband and two boys and became a Nuclear Medicine Technologist. Her career  as a tech started in 1994 in a large cardiology practice on Long Island where she still works as a Manager of a Nuclear Stress Lab.  In January 2013, Jane’s son was diagnosed with EHE.  She declared a personal war on EHE , giving every free minute of her time to this cause. She has been deeply involved in collecting clinical data, organizing doctors’ meetings, bringing awareness, and fundraising for EHE research.

You can contact Jane at janegutkovich@fightehe.org

 

 

Sarah Bright Yaneza, Director of Finance

Sarah comes to the EHE Foundation Board with fifteen years of financial and business management experience with not-for-profit organizations. Prior to forming her company in 2008, The Bright Solutions (www.thebrightsolutions.com), Sarah served as both the Director of Finance & Administration and the Patron Services Manager for The Washington Chorus. Sarah has direct accounting experience with all needs in the not-for-profit fiscal cycle, inclusive of audit, 990, fund accounting, and budgeting preparations. In addition, Sarah is familiar with benefits and payroll administration, consulting and project management for interim financial management solutions, executive search, website design, IT and database conversions, and special events.

Clients have described Sarah as a manager with great attention to detail and a steadfast approach. Sarah excels in interpreting corporate culture, analyzing areas where there could be efficiencies, and frequently partners with senior leaders to problem solve in matters of accounting and organizational development. Sarah has a Master of Arts in Arts Management from George Mason University, and a Bachelor’s of Music in Voice Performance. Sarah is a classically trained vocalist (lyric coloratura) and still performs for special occasions.

In September 2016, Sarah was diagnosed with EHE, affecting her liver and lungs. She is a military wife, with her husband retiring from the United States Navy in 2015. She has two children (7 and 3 years old), and is supported and sustained by an amazing family, church family, and friends from all over the country. She is currently under the watch-and-wait protocol with EHE and has had no interventions or treatments to date. Sarah is passionate about healing and has channeled her energy into bettering her own health and the health of those around her. It is a great honor that Sarah was asked to join the EHE Foundation board and she is encouraged with what the Foundation is doing on behalf of EHE and rare cancer research.

You can contact Sarah at sarahyaneza@fightehe.org

 

Lisa Hartle-De Young, Director, Patient Liaison/Patient Services

Lisa Hartle-De Young & FamilyLisa Hartle-De Young is an EHE survivor! Her world changed in January 2012 when she was originally misdiagnosed by her local community hospital with advanced breast cancer. Lisa’s imaging and lab work was not supporting this pathology diagnosis. She made the empowering decision to have her biopsy tissue sent to three additional laboratories for evaluation. On Valentine’s Day 2012, Lisa learned she had a very rare cancer called Epithelioid Hemangioendothelioma. Her EHE tumor was located in her neck and she had a successful surgery (modified radical neck dissection) at Stanford Medical Center in April 2012.

Unfortunately, Lisa’s family has walked this path before with her mother who passed away in 1986 from metastatic breast cancer and her sister who was also diagnosed in 2007 with breast cancer.  Lisa’s sister is a BRCA carrier but more importantly she is a breast cancer survivor! Her sister’s experience prepared Lisa for her own journey with EHE.  Lisa’s Dad remarried and his second wife also successfully battled breast cancer. So these life experiences have trained her in medical terminology, how to navigate the maze of health insurance, and how a cancer diagnosis steals your peace.

Lisa has been married to her husband for 35 years and lives in Northern California in a suburb of San Francisco called Walnut Creek. Her and her husband have raised (and survived) three sons, Andrew, Adam, and Austin.  Her eldest is married and her daughter-in-law Wenjing is a welcome addition to our family! Lisa’s fur baby is named Hope (Golden Retriever) and is the magic in her home! Before having a family,  Lisa worked for two large California banks in the Human Resources Department. She was responsible for recruiting  staff as well as serving as a 504 Compliance Officer. Her greatest personal satisfaction came from coordinating the annual United Way charity drive bank wide.

Lisa’s goal in this new role for the EHE family is to welcome, support, and assist new patients who find themselves in a group no one wants to belong to.  She aspires to provide compassionate and encouraging guidance as they navigate their new normal.  Lisa would love for you to share your own unique EHE story with her!

You can contact Lisa at lisadeyoung@fightehe.org 

LeeAnn Conner, Director of Marketing and Development

leeannconner@fightehe.org

 

 

 

 


International

 

Hugh Leonard, Director of UK Charity

hleonard@ehercc.co.uk

 

Jane Biddlecombe, Director of Australian Charity

jane.biddlecombe@ehefoundation.com.au

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