What do you want others to know about EHE?
For me EHE is learning to live with the uncertainty, pain, and chronic fatigue. In the same day you can feel really well and then suddenly feel really bad. Although you may feel perfectly fine, the pain can hit you like a hammer. It’s also lonely since there are very little cases because it’s a rare cancer. I personally don’t know anyone in my country with EHE, I just know one person through social media with it. I’m truly thankful to The EHE Foundation for all their work, and I want to shoutout the special support group on Facebook which makes me feel less alone.”
~ Martha Iglesias