Share Your Story

Through the end of 2025, we will be highlighting EHE stories on our social media platforms and website to raise awareness about this EHE.

Your story has the power to inspire, inform, and make a difference. Sharing your journey can help raise awareness about this rare cancer, connect you with others facing similar challenges, and shed light on the urgent need for research and treatments.

Together, we can amplify the voice of the EHE community and drive change. Please submit your story below and help us spread awareness. Your voice matters!