Sarah Bright

Sarah Bright

Greetings fellow EHE warriors, caregivers, and supporters! My name is Sarah Bright and I live in Williamsburg, Virginia and I have two young kids. I am an entrepreneur that combined a background in the musical arts with management of not for profit organizations. In 2008, I started my company, The Bright Solutions, partnering with not-for-profit cultural organizations in operations/financial management. My days are spent doing two things I love: managing/building a business and as the CEO for our home.

Since the early days of my EHE diagnosis (2016), I have become an advocate for myself by learning about health, have found ways to build community and social support, and have discovered that we all have untapped strength within us! I get frustrated that EHE is something that interrupts everyday life (doctor’s appointments, scans, procedures, etc.). Yet, the EHE diagnosis encourages us to stay in the moment. So, I honor my moments by laughing a bit louder, loving more fearlessly, and finding joy faster, even amidst unpleasantness. I am honored to serve as Treasurer for the EHE Foundation – an organization that has done so much incredible work in a relatively short period of time! Because I am a Board member, I often hear of research and opportunities before they hit the Foundation website or support page. Fellow warriors, this reinforces my optimism and courage about this highly vast and unpredictable disease. The question is not, “will the EHE Foundation find the cure,” but “when will the EHE Foundation find the cure?”

I encourage you to become an advocate for your own care. And, if you are in a season of giving, please share your gifts and talents with the EHE Foundation. As Treasurer, I can assure you that we are tirelessly working to fund the most important research and to build a Foundation that is reputable and well-respected in the medical community. I wish you peace, love, and joy during this holiday season.

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