Location: Remote (Flexible)
About the EHE Foundation
The EHE Foundation is a nonprofit organization dedicated to advancing research, raising awareness, and ultimately finding a cure for epithelioid hemangioendothelioma (EHE), an ultra-rare cancer. Patients diagnosed with EHE face significant challenges, including limited access to specialized care, complex and prolonged diagnostic journeys, and the absence of approved treatments. Our mission is to drive groundbreaking research, support patients, and foster collaboration among researchers, clinicians, and industry partners to accelerate progress toward effective treatments and a cure.
Position Overview
The Manager of Patient Advocacy & Research will play an integral role in the Foundation’s mission to advance much-needed research by facilitating education and awareness of research opportunities among patients, clinician scientists, and researchers. The role will bridge these stakeholders, requiring a highly organized, detail-oriented professional capable of managing multiple projects and priorities independently. Compassionate, ethical, and professional communication is essential for engaging with patients, researchers, and clinicians. The Manager of Patient Advocacy & Research will work closely with the Executive Director and Director of Research to drive projects forward and achieve strategic goals.
Key Responsibilities
Project Management
- Develop and maintain project plans and timelines, track progress, and identify risks.
- Implement mitigation strategies to ensure successful project completion.
Communication & Stakeholder Engagement
- Serve as a liaison between the Foundation and key stakeholders, including patients, researchers, clinicians, industry partners, and funding agencies.
- Provide clear and timely updates on project status, needs, and developments.
Patient Engagement
- Support patient recruitment, enrollment, and continued participation in research initiatives.
Ethics & Compliance
- Assist with Institutional Review Board (IRB) submissions, reporting, and compliance.
- Maintain study documentation and ensure adherence to ethical research guidelines.
Research Grants Support
- Provide administrative support for the Foundation’s Research Grants Program.
- Ensure compliance with all relevant national, state, and local guidelines, as well as Foundation policies and procedures.
Additional Responsibilities
- Contribute to the overall operations of the Foundation by taking on additional duties as needed.
Qualifications
- A deep commitment to the EHE Foundation’s mission and improving the lives of those affected by rare cancer.
- 3–5 years of professional experience in research, clinical care, or a related field.
- Knowledge and experience in Human Subjects Research preferred.
- Strong written and verbal communication skills.
- A proactive, detail-oriented professional who thrives in a fast-paced, dynamic environment while managing multiple priorities.
- A collaborative team player with a “whatever it takes” attitude to help the organization succeed.
- Strong problem-solving skills with a resourceful approach to overcoming challenges.
- Proficiency with technology and databases, including GSuite, MS Word, PowerPoint, and Excel. Willingness to learn new tools as needed.
Additional Information
- Open to both part-time and full-time applicants.
- Fully remote position with flexible work arrangements.
- Opportunity to grow professionally within a dynamic and supportive nonprofit environment.
How to Apply:
To apply, please email the following to [email protected]:
- Name
- Phone
- City, State/Province/Region, Country
- Position of Interest: Director of Development
- Where did you hear about this opportunity?
- Describe why you are passionate about this opportunity.
- CV/Resume
- Social Media Handles
The application process will take up to two weeks, and you may follow up with inquiries to [email protected]. Thank you for your interest in the EHE Foundation. We look forward to reviewing your application!