Makenna is 14 years old and was diagnosed with EHE in June 2022. Makenna shared about her EHE diagnosis, “It has changed my life by showing me that I should be grateful for the things I have in my life. Examples of those would be my family, my friends, just being able to take a breath of fresh air, being able to live my life without worrying I may get sick, or worrying people will make fun of me for something I would never wish upon anyone else.”
As an EHE Patient, Makenna’s inspirational advice to others who are diagnosed with EHE is, “Live your best life, to the fullest. Life is hard, but it is worth living. I never realized how well I had it and how amazing it was to be healthy until this tumor started forming. I realized some people have to fight for the privilege of experiencing life experiences with those they love. Be strong, and focus on what’s important, don’t let the little negative things ruin your fighting spirit!”
