We need your Our tissue donation program makes it easy and FREE!

Donate Now

Your support makes a difference. By donating to The EHE Foundation, you will help fund research, advocate for patients and bring us closer to a cure for EHE.


$50 one time donation
  • One-time Donation
  • Tax-Deductible

Suggested Donation

$20 monthly
  • Recurring Donation
  • Tax-Deductible
  • Must have a PayPal Account for Recurring Donations
  • Subscription can be cancelled via your PayPal account at any time.


$100 one time donation
  • One-time Donation
  • Tax-Deductible

If none of these amounts suit you, click the button below to make a donation in any amount.

We also gladly accept paper checks! Please make checks payable to "The EHE Foundation" and mail to:
The EHE Foundation
Attn: Julie Wahl
1561 Hopi Court
Hobart, WI 54313


This is our most important goal at this time. Dr. Brian Rubin, from Cleveland Clinic, assumed a leadership in EHE research. He has discovered the disease’s underlying genetic cause, identified a potential targeted therapy for EHE with MEK inhibitors, but there are many questions about EHE to which the answers are not known.


Establishing a community of patients and caregivers to share experiences has been an ongoing goal of our foundation. Our Facebook group and the Forum being built for this website will allow our patients, families and caregivers connect in a meaningful way.


We are also working hard to establish dependable resources for our community. A place to go for information, treatment plans and past experiences. This repository of information will also be made available to our researchers and doctors to allow for better communication about this disease and how it can be treated.

A few words from some EHE patients...

What is my donation used for?

Your donation goes to The EHE Foundations primary goals: research, community and educational resources. There are also minimal overhead costs to run the foundation.

Is my donation tax-deductible?

Yes, your donation is fully tax-deductible. We are a 501(c)(3) organization.