TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
By giving regularly, you become a steadfast partner in our mission, fueling hope, accelerating research, and empowering those affected by EHE. Together, we’re working toward a future where EHE is swiftly diagnosed and effectively treated, guided by these pillars of progress:
Sustain resources to support innovative discoveries that accelerate the development of effective treatments and a cure.
Ensure that patients, their families, and health providers have access to the most comprehensive information about EHE, including supportive resources. You empower individuals to navigate their EHE journey with knowledge and confidence.
Strengthen our voice as persistent champions for people living with EHE. You support strong collaborations with health providers, scientists, regulatory agencies, and drug developers to bring informed care and ultimately achieve better outcomes for those living with EHE.
Kelly Baug
Lael Bellamy
Jamie Butterfield
Maggie Cameron
Mary DeYoung
Chinweze Dike
Patricia & Michael Gieschen
Mary Hansbury
Ronald Hutchins
Patricia Kunkel
Gwendolyn Nitz
Michelle Nitz
Kate O'Boyle
Helen Patterson
Denise & Scott Robinson
Annalisa and Don Schneider
Pamela Scott
The Sheeley Family
Steve Smit
Carl Stromberg
Amit Tandon
Shane Wegener
Bart & Lynn Weitzenberg
Dennis Wiklund
Ryan Yoho
We are honored to share The EHE Foundation 2023 Impact Report, illustrating the significant progress made in 2023. With support from the EHE community, we advanced critical research, provided educational information to patients and families, and amplified awareness about this ultra-rare disease.
Our accomplishments bring hope for a future where effective treatments exist and are available and accessible to those who need them. With every step, we are gaining scientific momentum, improving patient care, and celebrating with families where people diagnosed with EHE can Just Live!