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The EHE library includes publications and articles about EHE research and treatments, as well as other relevant topics that are available online. Some articles are free with open access and others require subscription.
If you have an article to add or any questions, please contact us at [email protected].
"Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts"
This consensus paper provides key recommendations on the management of epithelioid hemangioendothelioma (EHE). Recommendations followed a consensus meeting of a multidisciplinary group of experts from different institutions from Europe, North America and Asia, as well as representatives from the ESMO Faculty, EURACAN, PAEDCAN, GENTURIS, EHE UK/US patient advocates and SPAEN. Thank you to Dr. Silvia Stacchiotti for her leadership and guidance of this groundbreaking resource!
"The patient perspective on sirolimus for epithelioid hemangioendothelioma (EHE): results of a community survey highlighting the importance of equitable access to treatments" was published on February 25, 2024, in the scientific journal, Frontiers in Oncology. Amplifying EHE patients' voices from around the world, the survey evaluated data from 129 patient responses from 21 countries. We thank the patients who were able to contribute to this important paper.
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