The EHE Foundation is proud to celebrate the success of the 2025 EHE 360 Global Patient Conference, a truly transformative event that brought together the global EHE community for learning, collaboration, and connection. Over 200 participants from a record 25 countries were united by a common mission to drive progress in EHE research, treatment, and patient care.

Held virtually, this two-day event emphasized patient and caregiver education, empowering individuals to become informed and active partners in their care journeys. Throughout the conference, an international panel of leading clinicians, researchers, and advocates shared the latest developments in EHE science, emerging treatments, cutting-edge research, and patient experience data. Their presentations left the community energized and optimistic about the strides being made toward effective therapies for this ultra-rare vascular cancer.

This gathering not only highlighted scientific and clinical advancements but also fostered a sense of connection and shared purpose, reminding everyone that while EHE is ultra-rare, no one faces it alone.

Conference Recordings Now Available!

We are excited to announce that recordings from the 2025 EHE 360 Global Patient Conference are now available for viewing. Whether you attended the event and want to revisit your favorite sessions or missed the live conference, you can now access these essential discussions at your convenience.

Watch the recordings here: FightEHE.org/ehe-360

We extend our heartfelt thanks to the speakers, participants, supporters, and our sponsors, Vivace Therapeutics and SpringWorks Therapeutics, who made this event possible. Together, we are moving closer to a future where people living with EHE have more answers, treatment options, and renewed hope.