Friday, January 28: Scientific Symposium 
Saturday, January 29: Global Patient Conference 

This two-day virtual event will bring together researchers, clinicians, and patients from around the world to advance the fight for treatments and a cure for EHE. Our goals include:

  • EDUCATION: Increasing knowledge and understanding of key issues central to the diagnosis, treatment, and cure for EHE
  • INNOVATION: Providing a novel, catalytic framework to identify gaps and foster dialogue in basic, translational, and clinical research of EHE
  • COLLABORATION: Stimulating an interdisciplinary sharing of clinical best practices by strengthening and supporting global collaboration world-wide

Scientific Symposium

Friday, January 28, 2022

10:00am - 3:00pm ET (US)

Researchers and Clinicians are invited to learn about emerging research, share challenges in clinical practice, and guide future basic, translational, and clinical research. Students in relevant fields of study are welcome.

Speaker Lineup

EHE Biology & What We Know

  • Brian Rubin, MD, PhD

EHE Models

  • Freek van Eeden, PhD
  • Nadia Zaffaroni, PhD
  • Mushriq Al-Jazrawe, PhD
  • Caleb Seavey, MD
  • Valerie Kouskoff, PhD
  • Fabio Vanoli, PhD
  • Holly Barker, PhD

Targeting the Hippo Pathway in EHE

  • Ajay Pobatti, PhD
  • Ryan Kanai

Gene Fusions in EHE

  • Keith Garcia
  • Frank Szulzewsky, PhD

Treating EHE: Presentations & Discussion

  • Tamara Vesel, MD
  • Anna Maria Frezza, MD
  • Aparna Subramaniam, MD
  • Abha Gupta, MD

Phase I Clinical Trial Spotlight: Ikena Oncology

  • Jeff Ecsedy, PhD

MEKINIST Trial Update

  • Scott Schuetze, MD

Roundtable - Advancing Translational & Transformational Research in EHE

  • Bill Tap, MD
  • Brian Rubin, MD, PhD
  • Silvia Stacchiotti, MD
  • Breelyn Wilky, MD
  • Paul Huang, PhD

Global Patient Conference

Saturday, January 29, 2022

10:00am - 2:00pm ET (US)

Patients, Caregivers, Clinicians, Researchers, and Advocates are invited to join this comprehensive interactive day which aims to increase knowledge and the understanding of key issues central to the diagnosis, treatment, and management of EHE.

Speaker Lineup

EHE Consensus Paper Presentation

  • Silvia Stacchiotti, MD
  • Robin Jones, MD
  • Hugh Leonard, EHE Rare Cancer Charity, UK

Spotlight on EHE Researchers

  • John Lamar, PhD
  • Munir Tanas, MD
  • Cristina Antonescu, MD

Biobanking – Patient Participation Advancing EHE Research

  • Brian Rubin, MD, PhD
  • Robin Jones, MD
  • Patty Cogswell, EHE Foundation Biobank Coordinator

Accessing and Understanding Specialty & Multi-Disciplinary Care

  • Katherine Thornton, MD
  • Scott Okuno, MD
  • Andy Donnely
  • Tamara Vesel, MD
  • Smriti Rai, MD
  • Helen Kouvnadias, PhD

Ask The Expert Roundtable

  • Robin Jones, MD
  • Breelyn Wilky, MD
  • Guy Weinberg, MD
  • Additional Experts TBA

2022 EHE 360 Conference Co-Chairs

Brian Rubin, M.D. Ph.D.

Cleveland Clinic

Silvia Stacchiotti, M.D.

Istituto Nazionale Tumori

Bill Tap, M.D.

Memorial Sloan Kettering Cancer Center

Event Sponsors

Platinum Sponsor
Silver Sponsor
Bronze Sponsor

EHE 360 is organized by The EHE Foundation as part of a patient-led research network, in collaboration with the UK EHE Rare Cancer Charity, the EHE Rare Cancer Foundation Australia, key global patient advocacy groups, and our medical and industry partners. Thank you to our generous donors, volunteers and the support of the CZI Rare As One Project and the Margie & Robert E. Petersen Foundation.

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