EHE Library

The EHE library includes publications and articles about EHE research and treatments, as well as other relevant topics that are available online. Some articles are free with open access and others require subscription.

If you have an article to add or any questions, please contact us at [email protected].

Featured Publications

Consensus Paper on EHE Management

"Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts"
This consensus paper provides key recommendations on the management of epithelioid hemangioendothelioma (EHE). Recommendations followed a consensus meeting of a multidisciplinary group of experts from different institutions from Europe, North America and Asia, as well as representatives from the ESMO Faculty, EURACAN, PAEDCAN, GENTURIS, EHE UK/US patient advocates and SPAGN. Thank you to Dr. Silvia Stacchiotti for her leadership and guidance of this groundbreaking resource!

The Patient Perspective on Sirolimus for Epithelioid Hemangioendothelioma (EHE)

"The patient perspective on sirolimus for epithelioid hemangioendothelioma (EHE): results of a community survey highlighting the importance of equitable access to treatments" was published on February 25, 2024, in the scientific journal, Frontiers in Oncology. Amplifying EHE patients' voices from around the world, the survey evaluated data from 129 patient responses from 21 countries. We thank the patients who were able to contribute to this important paper.

 

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Title of Article (click on title to link)Publication YearKey Words
2026quality of life, qualitative research
2026treatment, eribulin, clinical trial
2025case report, sintilimab, pulmonary
2025
2025incidence, prevalence, treatment
2025pulmonary
2025treatment, hepatic
2025model, cell
2025TAZ-CAMTA1, YAP, Hippo pathway
2025YAP1, TFE3
2025advocacy, drug development, drug repurposing
2025CAMTA1, TFE3, prognosis, risk model
2025Hepatic, case report, imaging
2025case report, sinus
2025case report, hepatic, symptom
2025TEAD, Hippo pathway, drug development, treatment
2025treatment
2025treatment, pazopanib, metastatic
2025hepatic, liver, resection, surgery
2025ultrasound, hepatic, liver, case study
2025liver, hepatic, surgery, robotics
2025treatment
2025CAMTA1
2025case report
2025case report
2025case report
2024hepatic, liver, retrospective, treatment
2024hepatic, liver, retrospective study
2024retrospective study
2024drug repurposing, treatment
2024biomarker, sirolimus, treatment
2024clinical registry, natural history study
2024endpoint, response, clinical trial
2024pleural, case report, treatment, diagnosis
2024MRI, diagnosis, pathology, hepatic, liver
2024treatment, drug TAZ, CAMTA1
2024biology, treatment
2024IRE, hepatic, liver,
2024treatment, liver, transplant, sirolimus
2024treatment, case report, immunotherapy
2024ablation, hepatic, liver, treatment, prognosis
2024treatment, trametinib, clinical trial
2024treatment, sirolimus, survey
2024pulmonary, imaging features, CT
2024WWTR1, TFE3, fusion, case report
2024pleura, case report
2024hepatic, liver, ablation, treatment
2024sirolimus, treatment, outcomes
2023hepatic, liver, treatment
2023hepatic, liver
2023TAZ, CAMTA1, fusion
2023YAP, TAZ, TEAD, Hippo Pathway
2023hepatic, liver, diagnosis
2023case report
2023case report
2023case report, hepatic
2023case report, hepatic, lung
2023hepatic, treatment, prognosis, retrospective
2023retrospective, survival, treatment
2023pulmonary, case report
2023liver, hepatic
2023Hippo Pathway, YAP, TAZ, TEAD
2023hepatic, liver, case report
2023pleura, pulmonary, case report
2023retrospective, survival, prognosis
2023incidence, survival
2023TAZ CAMTA1, model system
2023fusion, biomarker, genomics
2023treatment, systemic, Sirolimus, mTOR inhibitor
2023case report, treatment, PD-1 inhibitor
2023treatment, systemic, Sirolimus, mTOR inhibitor
2023case report, pulmonary
2023hepatic, liver, retrospective
2023case report
2023case report, orthopedic, radiotherapy
2023pulmonary, immunotherapy, case report, treatment, diagnosis
2023pulmonary, vessels, metastasis, surgery, case report
2023abstract, diagnosis, case report, bone, PET/CT
2023treatment, gemcitabine, case report
2023CDKN2A, fusion, progression
2023hepatic, liver, treatment, transplant, diagnosis, surgery
2023hepatic, liver, diagnosis, treatment, case report
2022mediastinal, case report, YAP, TFE3
2022hepatic, liver, treatment
2022hepatic, liver, ultrasound, retrospective, abstract
2022hepatic, liver, treatment
2022TAZ, YAP, fusion, TEAD
2022hepatic, liver, treatment, transplant, diagnosis, surgery
2022liver, lung, surgery, treatment, metastasis, case report
2022pleura, case report
2022pleura, case report
2022Interferon-Alpha 2b, sirolimus, case report, hepatic, liver, treatment
2022Interferon-Alpha 2b, case report, hepatic, liver, treatment
2022hepatic, surgery, treatment
2022pediatric, treatment, retrospective
2022treatment
2022TAZ, CAMTA1, fusion
2022treatment, liver, hepatic
2022fusion, TAZ, CAMTA1
2022pleura, metastatic, treatment
2022fusion, YAP, TAZ
2022genomics
2022YAP, TAZ, TEAD
2022fusion, CAMTA1
2022YAP, TAZ, TEAD
2022liver, hepatic, radiology
2022liver, treatment
2021indolent, treatment, retrospective
2021bone, case report
2021hepatic, liver, treatment, retrospective
2021hepatic, liver, treatment
2021prevalence
2021staging, diagnosis, PET/CT
2021pleura, case report
2021case report, bone, aggressive
2021case report, penis
2021pleura, treatment
2021fusion, YAP
2021fusion, YAP
2021fusion, TAZ, CAMTA1
2021clinical trial
2021hepatic, treatment
2021symptoms
2021fusion, YAP, TAZ, CAMTA1
2021fusion, YAP, TAZ, CAMTA1
2021treatment
2021liver, hepatic, resection, surgery
2021diagnosis, treatment, survival
2021bone, survival
2021bone, treatment
2021survival, prognosis
2021fusion, YAP
2021case report
2021bone, treatment
2020hepatic, liver, treatment, diagnosis
2020lung, treatment, survival, CT, retrospective, abstract
2020hepatic, liver, diagnosis, treatment
2020pulmonary, treatment
2020fusion
2020liver, heptaic, treatment
2020fusion, YAP, TAZ, CAMTA1
2020treatment
2020treatment, diagnosis
2020treatment
2020survival, prognosis
2020YAP, TAZ, survival, statin
2020symptoms
2020treatment, pediatric
2020treatment
2020diagnosis
2020pulmonary, treatment
2019hepatic, liver, treatment
2019pediatric, survival
2019treatment, surgery, ablation
2019bone, spine
2019pediatric, radiology
2019liver, hepatic, PET
2019bone
2019fusion, CAMTA1
2019hepatic, liver, transplant
2019treatment
2018hepatic, liver, diagnosis, pathology
2018bone
2018liver, hepatic
2018liver, hepatic, ablation
2018liver, hepatic
2018liver, transplant, hepatic, PET
2018treatment, prognosis
2018resection, surgery
2018bone, spine
2018treatment
2018fusion, YAP, TAZ
2017TFE3, case report
2017lung, pulmonary
2017lung, pleura, pulmonary, PET
2017bone, spine
2017bone, spine
2017lung, pulmonary
2017liver, hepatic, transplant, treatment
2017retrospective
2016CT, PET, prognosis, pulmonary, thoracic, retrospective
2016CAMTA1, fusion
2016treatment, retrospective
2016fusion, TAZ, CAMTA1
2016liver, hepatic, resection, surgery
2016fusion, YAP, CAMTA1
2016case report
2015fusion
2015lung, pulmonary, treatment
2015advocate perspective
2014spine, treatment
2014lung, pulmonary, treatment
2014liver, hepatic, treatment
2014fusion, YAP, TAZ, diagnosis
2014diagnosis, treatment, survival, symptoms
2014liver, transplant, hepatic
2014lung, pulmonary
2014bone, spine
2014bone, treatment
2013liver, hepatic, treatment
2013lung, pulmonary, treatment,
2013clinical trial
2013fusion, YAP
2013liver, heptatic, treatment, IRE
2013clinical trial
2012lung, pulmonary
2012bone
2012liver, survival, treatment
2011lung, pulmonary, PET
2011bone
2011fusion
2011lung, pulmonary
2011fusion, CAMTA1
2010liver, transplant, hepatic, treatment
2010liver, hepatic, treatment
2010lung, pleura, pulmonary
2010liver, transplant, hepatic
2010VEGF
2010liver, transplant, hepatic, treatment
2009liver, hepatic, treatment, retrospective
2008retrospective, prognosis
2008liver, hepatic
2007treatment
2007liver, hepatic, transplant
2006liver, hepatic, transplant, surgery
2006pulmonary, survival, case report
2004liver, hepatic, pediatric
2003bone
1999hepatic, liver
1999liver, transplant, hepatic, resection, surgery
1995liver, transplant, hepatic, survival
1982diagnosis
2015fusion, CAMTA1, diagnosis