EHE 360 2025 GLOBAL PATIENT CONFERENCE

CONNECT. EXPLORE. LEARN.

April 10-11, 2025

The EHE 360 Global Patient Conference is the largest gathering of EHE patients, clinicians, and researchers, coming together to connect, explore, and learn. This virtual annual event empowers the EHE community with a deeper understanding of the disease. Participants will hear from leading researchers about efforts to identify effective therapies, gain insight into the latest research and what that means for clinical care, and have the opportunity to engage in live Q&A sessions with expert clinicians.

Last year, people from 25 countries united to become a stronger, empowered community working together to improve the lives of people diagnosed with EHE.

Don’t miss this chance to connect, explore, and learn! Experience the movement driving progress in EHE research and care. There is no cost to attend. Registration is required.

Agenda

Thursday, April 10th | 10:00 - 1:00 pm ET Unlocking EHE: Global Momentum in EHE Science

Presentations will focus on science aimed at identifying effective therapies. Attendees will leave with a better understanding of how research translates into effective treatments in the clinic.

Denise Robinson, Executive Director & Director of Research

The EHE Foundation

Welcome & Introduction

Brian Rubin, MD, PhD

Cleveland Clinic

Keynote | Reflection on 10 Years of Discovery - Future Perspectives

Session 1

Advancing Treatments at Bench and Bedside

Munir Tanas, MD

University of Iowa

Development of Human-Derived EHE Models for Therapeutic Discovery

Sandro Pasquali, MD, PhD

Fondazione IRCCS Istituto Nazionale dei Tumori di Milano

GDF-15: How mTOR Inhibition Affects TC

Seth Haddix, PhD

The EHE Foundation

EHE Biobank

Session 2

EHE Biology & Biomarkers

Ryan Kanai, PhD Candidate

Albany Medical College

AMP Kinase Represses EHE Cell Growth

Xiaoqiong (Joan) Wang, MD, PhD

University of Miami

Differential roles of YAP and WWTR1 in EHE: Development and Mitochondria Dysfunction

Jason Hanna, PhD

Purdue University

Mechanisms and Mesenchymal Plasticity of EHE

Session 3

Ultra-rare Shots on Goal

David Casimir, JD, PhD

The EHE Foundation

Treatment or Cure: A Multi-Pronged Approach

Friday, April 11th | 10:00 - 1:00 pm ET EHE Clinical Management: Learning from Care Practices & Patient Experiences

Presentations will focus on the clinical management of EHE, including the popular Ask the Expert panel. Researchers will also share insights from patient-reported EHE experiences.

Jenni Kovach, President, Board of Directors

The EHE Foundation

Welcome - Day Two

Session 1

EHE Tumor Monitoring: What is Stable? What is Progression?

Anna Maria Frezza, MD

Fondazione IRCSS Istituto Nazionale dei Tumori, Milan

How Scans & Imaging Inform Treatment Decisions

Andrea Vanzulli, MD

Fondazione IRCSS Istituto Nazionale dei Tumori, Milan

Assessing EHE Growth - Why We Need a Better Tool in Our Box

Session 2

Hepatic EHE: Treatment Approaches

Cornelius Thiels, DO

Mayo Clinic

Mayo Clinic Experience Transplantation / Surgical Oncology

Govindarajan Narayanan, MD

Miami Cancer Institute, Baptist Health South Florida

Interventional Oncology

Session 3

Patients Driving Research to Improve Outcomes

Catarina Simoes, PhD Candidate

The Netherlands Cancer Institute

Quality of Life in EHE

Sania Choudhary, Research Junior Fellow

The EHE Foundation

EHE GPR - Harnessing Every Patient's Journey

Session 4

Ask the Expert Panel

Submit a Question

Tom Wei-Wu Chen, MD, PhD

National Taiwan University Hospital

Gina D’Amato, MD

University of Miami

Sandra D’Angelo, MD

Memorial Sloan Kettering Cancer Center

Abha Gupta, MD

Princess Margaret Cancer Centre

2025 SPONSORS

2024 Conference Recordings

Last year, more than 260 people from 25 countries registered for this transformative event which broadened our understanding of EHE and deepened the connection among community members. Attendees left the conference feeling empowered with knowledge, motivated to participate in research, and most importantly, optimistic about the developing landscape of EHE science and research. Watch the recordings below.