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EHE 360 2025 GLOBAL PATIENT CONFERENCE
CONNECT. EXPLORE. LEARN.
April 10-11, 2025
Registration is Open
The EHE 360 Global Patient Conference is the largest gathering of EHE patients, clinicians, and researchers, coming together to connect, explore, and learn. This virtual annual event empowers the EHE community with a deeper understanding of the disease. Participants will hear from leading researchers about efforts to identify effective therapies, gain insight into the latest research and what that means for clinical care, and have the opportunity to engage in live Q&A sessions with expert clinicians.
Last year, people from 25 countries united to become a stronger, empowered community working together to improve the lives of people diagnosed with EHE.
Thursday, April 10th | 10:00 - 1:00 pm ET Unlocking EHE: Global Momentum in EHE Science
Presentations will focus on science aimed at identifying effective therapies. Attendees will leave with a better understanding of how research translates into effective treatments in the clinic.
Friday, April 11th | 10:00 - 1:00 pm ET EHE Clinical Management: Learning from Care Practices & Patient Experiences
Presentations will focus on the clinical management of EHE, including the popular Ask the Expert panel. Researchers will also share insights from patient-reported EHE experiences.
Don’t miss this chance to connect, explore, and learn! Experience the movement driving progress in EHE research and care.
There is no cost to attend. Registration is required.
2025 SPONSORS
2024 Conference Recordings
Last year, more than 260 people from 25 countries registered for this transformative event which broadened our understanding of EHE and deepened the connection among community members. Attendees left the conference feeling empowered with knowledge, motivated to participate in research, and most importantly, optimistic about the developing landscape of EHE science and research. Watch the recordings below.
Brian Rubin, MD, PhD Cleveland Clinic
EHE 101: What You Need to Know
Nadia Zaffaroni, PhD FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI DI MILANO
Identification of Biomarkers for EHE to Inform Patient Management and Potential Therapeutic Targets
Tom Wei-Wu Chen, MD, PhD NATIONAL TAIWAN UNIVERSITY HOSPITAL
Myth Buster: A medical oncologist's view on the management of EHE
Hugh Leonard, Chair of Trustees EHE RARE CANCER CHARITY (UK)
EHE European Research Collaboration
Denise Robinson, Principal Investigator, Director of Research The EHE Foundation
A Community Update on the EHE Global Patient Registry
Ajaybabu Pobbati, PhD Cleveland Clinic
Targeting EHE: Pocket Science and Other Approaches
Fiona Ross, Board of Directors SARCOMA CANCER FOUNDATION OF CANADA
ProCARE Canada Research Update
Pan Pantziarka, PhD Anticancer Fund
Drug Repurposing: Emerging Opportunities to Identify Treatments for EHE
Andrei Ivanescu, President EHE ITALIA ASSOCIAZIONE NON SOLO LAURA ODV
EHE ITALIA
Elizabeth Davis, MD VANDERBILT UNIVERSITY MEDICAL CENTER
William Tap, MD MEMORIAL SLOAN KETTERING CANCER CENTER
Rashmi Chugh, MD UNIVERSITY OF MICHIGAN ROGEL CANCER CENTER
Melissa Burgess, MD UPMC HILLMAN CANCER CENTER
ASK THE EXPERT PANEL
PAST ANNUAL CONFERENCES
EHE 360
EMPOWERING PATIENTS
2023 GLOBAL PATIENT CONFERENCE
2022 EHE 360 INTERNATIONAL CONFERENCE
January 28: Scientific Symposium
January 29: Global Patient Conference
