What do you want others to know about EHE?
“Getting to know other cases through the EHE Foundation, I realized that, even though all cases are very different, uncertainty is something we all share. I have my hopes on the community built around EHE, where I no longer feel alone and trust that there will soon be a cure. I try to live my life one day at a time. My daughters give me the strength I need to feel that there is much more life ahead of me. I would like to say to all of you: don’t be passive patients. Be active protagonists in the search for sympathetic doctors who make you feel confident and sure that they will be able to control, improve and overcome this disease. And to remind you that the EHE Foundation will support you always. You are not alone anymore.”
~ Carmela Valdivieso