xCures - Advance Clinical Science
xCures Observational Research Platform
Your medical records are a rich source of information that can help doctors and researchers learn how different treatments work for EHE. Our goal is to use this information to help people with EHE and help clinicians select treatments more effectively in the future.
Your Participation is Important
If you have been diagnosed with EHE, you are rare – less than 1 in 1 million people are diagnosed with EHE. By combining your medical data with that of other EHE patients – without sharing your identity – doctors and researchers can identify and prioritize treatments that may show promise.
EHE presents differently in different people, making it hard for doctors and researchers to collect enough data to understand how to treat or manage its different presentations. Combining data allows doctors and researchers to review more information across different presentations.
Data can help answer essential research questions and meaningfully advance clinical science, and ultimately improve clinical care.
Put your medical records to work.
Observational studies accelerate EHE research by:
- Providing consistent, comparable data from a large group of people
- Building a more comprehensive understanding of the disease
- Helping researchers develop and possibly advance hypotheses
- Identifying potential best practices in treatment and disease management approaches
- Potentially providing important external control data to accelerate the review of a drug or therapy for regulatory approval
In partnership with xCures, we can learn from the experiences of people with EHE in an observational research study and use those experiences to advance clinical science. The project is simple:
- The xCures platform captures de-identified medical data related to a patient’s diagnostics, treatments, and treatment outcomes
- Artificial intelligence (AI) organizes the information into structured, regulatory-grade clinical data
- By analyzing many patients’ records together, we can make big progress in finding the most promising treatments.
Put your medical records to work to advance EHE research.
Watch the video to learn more about xCures.
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More Ways to Power EHE Research
Discover additional ways to share your experience, raise your voice, and accelerate progress.