Be the Key: How 1 in a Million Can Unlock Progress

Watch as members of the EHE Foundation team explain why each patient's experience is critical to unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can drive scientific advances, deepen understanding of the disease, and ultimately create a better future for everyone diagnosed with EHE. Learn about the EHE Global Patient Registry, the EHE Biobank, and the xCures project, how they differ, and how they complement each other. This discussion is for people newly diagnosed and those who have lived with an EHE diagnosis for years. You can open doors to a better future for everyone with EHE.

Recorded September 19, 2026.