Research Roundtable: Advocacy in Action

In late January, 2025, EHE advocacy leaders from The EHE Foundation, EHE Rare Cancer Charity UK, and EHE ITALIA Associazione Non Solo LAURA ODV coordinated a joint meeting with expert clinicians and researchers in Amsterdam, The Netherlands. Stakeholders from Italy, the United Kingdom, and the United States reviewed progress on ongoing collaborative research programs and explored key research priorities aimed at improving EHE patients’ lives.

This research roundtable was one of many important convenings with multidisciplinary experts who generously give their time and expertise to advance knowledge and care in EHE. While much work remains, we are deeply grateful to everyone who supports our mission through these invaluable collaborations.