Clinical Trials

Clinical trials are an essential step in the pathway to drug approval for a disease or new indication. For some people, a clinical trial may be the only viable treatment option.

There are currently no drugs approved for the treatment of EHE. As part of our mission to advance research, the EHE Foundation closely monitors clinical trials most relevant to people diagnosed with EHE and advocates for additional studies to better understand how different drugs work in EHE. Below are clinical trials that seek to include people diagnosed with EHE. Additional details and contact information for each study are available at the linked ClinicalTrials.gov identifier.

• When considering a trial, consult with your physician and the trial team to address any questions you may have.
• For more details, email [email protected].

Questions to ask your care team when considering a clinical trial:

1. Do you recommend that I consider a clinical trial?
2. Am I a good candidate for a trial?

Questions to ask the study team before taking part in a clinical trial:

1. What is being tested in the clinical trial? Is the clinical trial testing a new therapy?
2. Has the drug in the trial been used for other diseases?
3. What is the goal of the trial?
4. What are the risks and benefits of the clinical trial?
5. How long will I be in the clinical trial?
6. How often will I have study visits, and where will they take place?
7. How much time should I expect for study visits?