TISSUE DONATION IS CRITICAL TO FIND TREATMENTS! Click here to learn more.
Latest EHE News, Events & Research
Click here to read the Pledge: Edition 16, Q1 – Jan-Mar, 2019
Read More
Although most participants already completed their 5K, registration for the 4th Annual EHE Virtual 5K will remain open until all shirts are sold. Click here for more information. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look […]
Read More
During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]
Read More
Hi, I’m Maggie Cameron. I’m a mother, cousin, designer and Crohn’s and EHE survivor. I live just south of Pittsburgh, PA. I love to spend time with my family, work (yes, I love it), run and ski! My EHE story started with my diagnosis of Crohn’s disease in 2009. The imaging showed a “thing” on […]
Read More
My name is Jennifer San. I was first diagnosed with EHE in Dec 2017 after having a biopsy on two tumors that were removed from part of my left lung. I’ll never forget the day and the look on the doctor’s face when he gave me the news. When he opened the door to the […]
Read More
Hi, my name is Jenni and I live in Columbus, Ohio. I am the mother of a wonderful, nine year old daughter and happily married to my spouse of 18 years. I enjoy camping, hiking, playing board games, and watching Ohio State Buckeyes football. I was diagnosed with EHE on December 29, 2018 after a […]
Read More
My name is Zebrina Lauridsen. I am 24 years old, and I am the mother of a beautiful 2 year old little girl. I was born and raised in the smack-dab in the middle of the US, Joplin, Missouri. I graduated from cosmetology school, and worked in a salon for a few years. Then I got […]
Read More
“My name is Fransheska Nazario, I’m 25 years old and I am from Bolingbrook Illinois. I have a daughter that is four years old and her name is Penelope and we have a pet rabbit named Clover. Spending time with my family is what keeps me going every day. I enjoy arts and crafts, cooking, […]
Read More
Hello, my name is Kathy, and I live near Kalamazoo, Michigan. I have taught migrant and bilingual students for more than 35 years. My EHE was discovered in the spring of 2018, in both lungs. I cried at first, scared and not sure what to expect, but I decided to be as emotionally strong as I […]
Read More
My name is John Wesley Lamb. I am 50 years old from rural South Arkansas. I say I am just an ordinary guy. I am married to my wonderful wife, Angelia, and have three children, Juliann (Married to Logan), Caleb (engaged to Rachael) & Joshua. We have two grandchildren, Elizabeth & Layton. I love being […]
Read More