Connect. Explore. Learn.
May 14, 2027
Save the Date
EHE 360 Global Conference is the EHE Foundation's cornerstone educational platform and the world's only patient-led global forum dedicated exclusively to EHE, uniting people living with the disease, their families and caregivers, researchers, clinicians, and industry for scientific and clinical insight and connection.
EHE 360 spans two tracks: the EHE Scientific Symposium, featuring emerging research and therapeutic development, and the EHE Clinical Care Summit, covering diagnosis, treatments, supportive care, and clinical trials. All sessions provide opportunities to engage with presenters and panelists.
“EHE 360 is where connection, education, and progress happen.
Denise RobinsonExecutive Director, EHE Foundation
2026 EHE 360 Global Conference
Held on April 30th and May 1st, the 2026 EHE 360 Global Conference brought together researchers and clinicians from four continents for 17 presentations across six sessions, anchored by the meaningful interactions between scientists and the community that define EHE 360.
Immediately following the conference, the EHE Foundation hosted the EHE Social Hour, an unstructured gathering where attendees connected informally to share perspectives and learnings, strengthening our community and shared mission.
The EHE 360 Global Conference Report is now available, capturing presentation summaries, key takeaways, opportunities for further exploration, and reasons for hope from this year's event.
2026 Event Sponsors
“I always leave this conference full of hope! It’s amazing that so many scientists dedicate their careers to EHE. I’m so grateful.
Amy B.2026 Conference Attendee
2026
EHE 360 Conference Recordings
Past EHE 360 Global Conferences
We are Changemakers
We are working to improve lives by transforming EHE from a life-changing diagnosis into a treatable and ultimately curable disease.