In the News

Ikena Oncology Logo

Planned Ikena Oncology Clinical Trial to Include EHE Patients

By The EHE Foundation / January 31, 2022 / Comments Off on Planned Ikena Oncology Clinical Trial to Include EHE Patients

The planned Phase 1 clinical trial includes patients with tumor types with a high frequency of Hippo pathway alterations, including NF2-deficient malignant mesothelioma and some soft tissue sarcomas with YAP/TAZ genetic fusions, including Epithelioid Hemangioendothelioma (EHE), a rare form of soft tissue sarcoma that has a significant unmet medical need with no currently approved therapy […]

Read More
Patty Cogswell

The Importance of Biobanking

By The EHE Foundation / May 17, 2021 / Comments Off on The Importance of Biobanking

Biobanking is a brand-new endeavor for us at The EHE Foundation. Researchers retain frozen and stored tissue and biological samples from surgeries, which usually remains within the institution where the procedure takes place. Today, biobanking is a game-changer for rare disease and patient-led organizations like ours. Biobanks accelerate research by safe-guarding high-quality, donated tissue samples […]

Read More
DNA

Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

By The EHE Foundation / April 20, 2021 / Comments Off on Researchers Engineer Much-Needed Mouse Model of a Rare Vascular Sarcoma

Dr. Rubin used a novel approach to target the gene fusion that causes epithelioid hemgioendothelioma, engineering a novel, first-of-its-kind mouse model of the disease, which will help advance studies to identify new treatments. Click here to read the full article. Sharing exciting news highlighting Dr. Brian Rubin’s research at the Lerner Research Institute at Cleveland […]

Read More
Leah Heinrich

Leah Heinrich Participates on Scientific Peer Review Panel

By The EHE Foundation / March 2, 2021 / Comments Off on Leah Heinrich Participates on Scientific Peer Review Panel

For Immediate Press Release:  SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate Leah Heinrich recently participated in the evaluation of research applications submitted to the RCRP. Leahwas nominated for participation in […]

Read More

EHE Highlighted in Recent Cancer Today Article

By The EHE Foundation / October 13, 2020 / Comments Off on EHE Highlighted in Recent Cancer Today Article

For their Fall 2020 issue of Cancer Today magazine, the American Association of Cancer Research profiled our director, Medha Deoras-Sutliff! Medha talks about her own journey and how she came to work with The EHE Foundation. Ever the diligent advocate, she insisted the writer include some information about EHE. Read the full article here!

Read More
Medha Deoras-Sutliff

Medha Sutliff Profiled by Global Genes

By The EHE Foundation / April 9, 2020 / Comments Off on Medha Sutliff Profiled by Global Genes

Our own Executive Director, Medha Sutliff was profiled by Global Genes Rare Foundation Alliance as a RARE Leader. Click here to read Medha’s full profile!

Read More