Fundraising & Events

4th EHE 5K Virtual 5K Run/Walk a Huge Success!

By The EHE Foundation | August 14, 2019

Once again many individuals and small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in the 4th Annual EHE 5K Virtual 5K Run/Walk. We surpassed our goal (to exceed last year’s participants) by leaps and bounds with 1,006 participants and $47,538 raised of which […]

REGISTRATION IS NOW CLOSED FOR OUR 4th ANNUAL EHE VIRTUAL 5K BUT T-SHIRTS STILL AVAILABLE!

By The EHE Foundation | March 5, 2019

Although most participants already completed their 5K, registration for the 4th Annual EHE Virtual 5K will remain open until all shirts are sold. Click here for more information. 100% of the donations and profits from this event will be dedicated to EHE research. We hope you’ll join us to make a difference as we look […]

EHE Informational Bifold

By The EHE Foundation | November 28, 2018

The EHE Foundation Giving Tuesday Bifold 2019

During this past week, we have featured several touching stories of those affected by EHE (see below). These stories have one thing in common, which all EHE patients can relate to: there are no standard treatments for EHE. Money raised by The EHE Foundation during #Giving Tuesday (Nov 27th) will address this common issue and […]