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The first international, patient-led, scientific meeting organized to gain consensus on the state of EHE research and clinical management of patients. Session I (State of EHE Research) was on Friday, January 15 & Session II (Clinical Management of EHE) on Friday, January 22.
Our goal? To create a global, patient-led research network strategically focused on shared research priorities ultimately leading to treatments and cure for EHE! Note: presentations are mostly targeted to the researchers and clinicians interested in EHE research and patient management, but we welcome the global EHE community to participate and gain a "front row seat" at this groundbreaking event!
Thank you to the Chan Zuckerberg Initiative, Rare As One Project for their generous support of EHE 360!
We are so pleased with the outcome of our first international conference; however, we can always learn more from you. Once you've had a chance to explore the platform and watch some presentations, let us know what you thought! Click here to provide your feedback. This will help us plan meaningful events in the future and ensure that those events fulfill the needs and wants of our community. You are the backbone of our community, so your feedback is most important!
© 2021 The EHE Foundation
Jenni Kovach
President, The EHE Foundation
Welcome & Kick-off to Session I
© 2021 The EHE Foundation
William Tap, M.D.
Memorial Sloan Kettering Cancer Center
Overview of the EHE Center of Expertise at MSKCC
© 2021 The EHE Foundation
Cristina Antonescu, M.D.
Memorial Sloan Kettering Cancer Center
Pathologic and Molecular EHE subsets - An update
© 2021 The EHE Foundation
Professor Valerie Kouskoff
The University of Manchester, UK
An in vitro model to study the consequences of TAZ-CAMTA1 expression in primary endothelial cells
© 2021 The EHE Foundation
John Lamar, Ph.D.
Albany Medical College
Identification of negative regulators of the TAZ-CAMTA1 fusion protein
© 2021 The EHE Foundation
James Chen, M.D.
The James, OSU Comprehensive Cancer Center
Exploring the Genomic Landscape of Epithelioid Hemangioendothelioma
Nathan D. Seligson, Pharm.D. (co-present)
University of Florida
Exploring the Genomic Landscape of Epithelioid Hemangioendothelioma
© 2021 The EHE Foundation
VIDEO Presentation by EHE Patient Advocates
© 2021 The EHE Foundation
Hugh Leonard
EHE Rare Cancer Charity, UK
Spotlight on EHE Group
© 2021 The EHE Foundation
Patty Cogswell
Consultant
Spotlight on EHE Biobank
© 2021 The EHE Foundation
Brian Rubin, M.D. Ph.D
Cleveland Clinic
Lessons learned from a genetically engineered mouse model of epithelioid hemangioendothelioma
© 2021 The EHE Foundation
Jordan Driskill
UTSW Medical Center
TAZ(WWTR1)-CAMTA1 initiates TEAD-dependent angiogenic reprogramming in endothelial cells to drive EHE
© 2021 The EHE Foundation
Albiruni Razak, M.D.
Princess Margaret Cancer Center, Canada
PLATO Study - Trial in Progress
© 2021 The EHE Foundation
Professor David Thomas
Garvan Institute of Medical Research, Australia
Genomics, Precision Oncology & EHE
© 2021 The EHE Foundation
Jenni Kovach
President, The EHE Foundation
Welcome & Kick-off to Session II
© 2021 The EHE Foundation
Scott Okuno, M.D.
Mayo Clinic
Overview of EHE
© 2021 The EHE Foundation
Silvia Stacchiotti, M.D.
Fondazione IRCCS Istituto Nazionale Tumori, Italy
Update from Milan: Overview of ESMO Workshop on Vascular Sarcoma & What’s Next
© 2021 The EHE Foundation
Professor Robin Jones
The Royal Marsden, UK
The Role of Local Therapy in Multi-focal Epithelioid Hemangioendothelioma.
© 2021 The EHE Foundation
Charles Rosen, M.D.
Mayo Clinic
The Role of Liver Transplantation in the Clinical Management of EHE
© 2021 The EHE Foundation
Govindarajan Narayanan, M.D.
Miami Cancer Institute
IRE in the Management of EHE in the Liver
© 2021 The EHE Foundation
VIDEO Presentation by EHE Patient Advocates
© 2021 The EHE Foundation
Lisa De Young
The EHE Foundation
Spotlight on EHE Patient Community
© 2021 The EHE Foundation
Marije Weidema
Radboud University Medical Center, Netherlands
Differences in quality of life between EHE patients, a global and online patient-initiated study
© 2021 The EHE Foundation
Scott Schuetze, M.D., Ph.D.
Rogel Cancer Center, University of Michigan
Preliminary Observations From a Phase 2 Trial of Trametinib in Patients With EHE
© 2021 The EHE Foundation
Denise Adams, M.D.
Children’s Hospital of Philadelphia
Pediatric EHE: Children are not "little" adults or are they?
© 2021 The EHE Foundation
Breelyn Wilky, M.D.
University of Colorado
Systemic treatment for EHE: Customizing therapies for individual patient