Patient & Support Services

On behalf of the EHE Foundation, I would like to warmly welcome you to the Patient & Support Services section of our website. I’m sorry we are being brought together under such difficult circumstances, but I want you to know you are not alone. We are here for you and grateful you have found us!

Please take your time to explore the tabs in the drop-down menu. My hope is you will find the answers you are searching for but also feel the compassion, kindness, and support as you navigate uncharted waters. Keep in mind each patients’ experience is as individual as their fingerprint. Our foundation motto is Just Live!

If you are newly diagnosed or looking for specific information, please feel free to contact me at LisaDeYoung@fightehe.org.

The Newly Diagnosed page will help you get started on your quest for answers.

If you are a friend or family member of someone diagnosed with EHE, please visit our Caregivers page for helpful information and resources..

Support after EHE Diagnosis