Published on: March 25, 2023
Categorized as: Advocacy
SARC Talk Podcast Featuring EHE Research & Patient Advocacy
In March Denise Robinson, our Director of Research joined Dr. Scott Okuno, Chief Medical Officer for SARC (Sarcoma Alliance for Research through Collaboration) to talk about EHE research and patient advocacy.
In March Denise Robinson, our Director of Research joined Dr. Scott Okuno, Chief Medical Officer for SARC (Sarcoma Alliance for Research through Collaboration) to talk about EHE research and patient advocacy.
Their discussion beautifully lays out the challenges of facilitating research in the ultra-rare disease landscape. Denise and Dr. Okuno also talked about the growth of The EHE Foundation, its core programs and the needs of the EHE community.
SARC Talk is a podcast discussing the latest in sarcoma research. To find out more visit sarctrials.org. Listen to the SARC Talk Episode 5 here, or wherever you listen to your favorite podcasts.
