EHE ESMO Consensus Paper for Patients

This document has been produced by the EHE Group to provide information for patients diagnosed with epithelioid hemangioendothelioma (EHE), wherever they live in the world, to help them understand this ultra-rare sarcoma and allow them to engage in more informed discussions and decision-making with their medical teams.

This document is a patient's version of the paper: “Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts,” published in June 2021. This EHE consensus paper was produced in order to document and agree on key facts concerning the management of EHE, for which there was little or no agreed information.

The consensus was developed through the organization of a global consensus meeting, held in December 2020 under the auspices of the European Society for Medical Oncology (ESMO), and chaired by Dr Silvia Stacchiotti from the Fondazione IRCCS Istituto Nazionale dei Tumori in Milan. The meeting involved more than eighty experts from multiple disciplines from Europe, the United Kingdom, the USA, Canada and Asia. Patient advocates from the EHE Group and from Sarcoma Patients EuroNet (SPAEN) also took part.