We need your Our tissue donation program makes it easy and FREE!

5th Annual EHE Fun Run and Walk

We hope you’ll join us for the 5th Annual EHE Fun Run and Walk! 100% of the donations and profits from this event will be dedicated to EHE research.

This family fun event is for all ages and abilities.  It is also virtual, which means it can be done anywhere you are.  Simply register before April 1st, receive your race packet on or before April 18th, choose to do a 5K (3.1 miles) or 1K (.62 miles), and complete it before May 3rd.  You can do it alone or with others who register.

The price of $30 includes a t-shirt, race bib, EHE bracelet, and temporary “Just Live” tattoo.

Individual donors and companies have an opportunity to sponsor the 5th Annual EHE Fun Run and Walk.  Also, each week we will be featuring stories of lives affected by EHE to help spread awareness.

Last year many small groups of families and friends joined together in neighborhoods, parks, or local trails all over the nation to participate in this virtual event and support or honor their loved ones.  Some groups made a family fun day out of the event.  We also had many individuals complete this event on their own at a location/time convenient for them. We hope you will join us in this nationwide event!

Helpful Links

Click here to share this event from our Facebook page.

Click here if you know a company or donor who may be interested in sponsoring the our event.

Click here to view a 5th Annual EHE Run Run and Walk flyer (for downloading or printing)

5th Annual EHE FUN Run and Walk

Notes of Inspiration 🙂

My mother, Angie Stallings, passed away from EHE on February 1st of this year. It is an honor to walk in memory of her and in celebration of her life. To the caregivers of those who have battled or are currently battling EHE, thank you for your dedication and time. Watching someone you love suffer from such a terrible disease is extremely heartbreaking. But take hope. God is able.

Thank you to those who are fighting EHE on behalf of all patients.  This group of amazing volunteers, those affected by EHE, doctors, sponsors, and donors have formed an extraordinary team through this organization.  We look forward to this event every year and are always inspired by the community awareness and funding it raises.   Thank you!