5th Annual EHE Fun Run and Walk

Thanks to those of you who have been waiting patiently to participate in the 5th Annual EHE Fun Run and Walk! April and May have definitely been a unique time for our nation and our EHE family.  We apologize for having to shift this event due to circumstances beyond our control.  We are excited to announce that All registrations completed before June 1st were shipped on June 1st.  We ordered many extra shirts and will keep registration open through at least until the end of August.  As of August 31st, we no longer have 3XL, 4XL or 5XL shirt sizes available. As long as your requested size is available, your shirts will be shipped as they are ordered.

This family fun event is for all ages and abilities. It is also virtual, which means it can be done anywhere you are. Simply register, receive your race packet in the mail (based on when you register), choose to do a 5K (3.1 miles) or 1K (.62 miles), and complete it anytime in 2020. You can do it alone or with others who register. You can join a “team” to walk in honor of in memory of a loved one. You can also leave a note of inspiration. 100% of the donations and profits from this event will be dedicated to EHE research.

The 5th Annual EHE Fun Run and walk t-shirts are red with artwork shown here.  The back will state “Thanks for sponsoring our 5th Annual EHE Fun Run and Walk”, have our amazing sponsors’ information displayed, and include the “Just Live” artwork.

The price of $30 includes a t-shirt, race bib, EHE bracelet, temporary “Just Live” tattoo, and shipping (US only).

Helpful Links

Click here to share this event from our Facebook page.

Click here if you know a company or donor who may be interested in sponsoring the our event.

Click here to view a 5th Annual EHE Run Run and Walk flyer (for downloading or printing)

Front of Shirt Working

Notes of Inspiration

Angie, I miss you so much. You continue to be an inspiration. We are distraught that you're not here any more, but I'm so thankful to have these warm memories of you.

To the strongest woman I know who puts everyone else first.. Your and inspiration for all who know you and love you.. Tori you got this!!

In Memory of Douglas Duckworth, who passed away from EHE 12/20/17. He fought the fight...loved and missed dearly!

Daniel keep fighting! We love you!

WE ARE...Team Joe! Stay Strong!
The Sload Family OXOX

We support and love you Ryan!

You will never fight alone, Tori!

Thinking of you, Maeve!! You're a strong woman! You got this! Swifts are running for you!

Happy to support Joe and the entire Mulligan family!

Stacey, your strength and positive spirit inspire so many.

Praying for you Tori Jordan
Love your Friend Kristi Jo

To my daughter who is a mother of two young children and her husband. All we have is this day. We can not let fear and anxiety rule the day. We will stare it down and walk forward.

Harrison is no longer here, #TeamPluta continues to fight along side every other EHE warrior as we battle towards finding a treatment and cure!

Lisa's EHS journey ended on May 12, 2020, when she went home to her Savior Jesus Christ. We walk in memory of her beautiful smile and spirit.

Way to go Joe - We are here to fight EHE!!

Thank you to those who are fighting EHE on behalf of all patients.  This group of amazing volunteers, those affected by EHE, doctors, sponsors, and donors have formed an extraordinary team through this organization.  We look forward to this event every year and are always inspired by the community awareness and funding it raises.   Thank you!

Running for my dear friend who            got me into running. Defis!

I am DIANA strong!

To Diana Axness from Wanda Walker

Best Uncle EVER!! Love you Uncle Danny!

We love you, Delaney! - The Kulkids

In Honor of Kristen Carlton; thank you for hosting the 2nd annual run in Ft Lauderdale it is a labor of love and support for those affected by EHE and it raises awareness in the community. Stay strong.

To Kristen Carlton, you're an inspiration and the true vision of grace under pressure. "Just Live" is fitting and I will support you this April 25th.
Deborah Fink

My mother, Angie Stallings, passed away from EHE on February 1st of this year. It is an honor to walk in memory of her and in celebration of her life. To the caregivers of those who have battled or are currently battling EHE, thank you for your dedication and time. Watching someone you love suffer from such a terrible disease is extremely heartbreaking. But take hope. God is able.

Laney, people are faced with challenges everyday, you have been faced with the same one for 6 years and are still going strong. Stay positive, stay strong, stay awesome.

Together we are stronger!

In Memory Of Rosie Kalair Who This Wicked Disease Took Much Too Soon. You Are in My Thoughts Forever and I Miss You. Chad

Every day, I pray that God gives you more strength than he did yesterday!

This rare cancer Tori isn't fighting alone so lets help her and all with EHE by doing a 5K Walk/Run during the month of June 2020. Sign up today, get your packet around June 1st and be ready to RUN! Don't forget to take pictures and post to Tori's Facebook. Thanks Jill

We run for Joe Mulligan. Your strength inspires us!

XO The Colitti Family

For our brave grandson, Joe.

We love you.

Joe is one of the strongest kids I have ever met! I feel very lucky to know someone who brings so much joy to our school!

To Joe,

The strongest kid I know! Your smile can light up a room!

With so much love,
Mrs. Hurle

Go Team Joe!

The Northwest Small Equine Club and friends are walking to support Diana Axness. We've got your back!

Diana strong.

We walk in honor of our son Joe!

Praying for strength for the journey, hope and healing for Tori.

Go Maeve! We love you from Spokane !! You are #swiftstrong

Running with Tori!

I am walking in support of Natalie Pizzimenti

We love you Tori!

Daniel was are so proud of how strong you are!

We support you.

Praying for you Tori Jordan. You got this girl! We are all on your team!

Daniel we are inspired by your courage and strength! Just Live!

We love you Joe!!


Tori always remember as your going through this journey that you are Amazing, Strong and a girl who always fought for what she wanted and Wins! Just Believe cause "You Got This" Love and Hugs Deb ...Part of your village.

Running for my cousin Dan, with love from Texas!

Happy to run some miles for Maeve

We are here for you always! #JustLive

Daniel, you are the strongest person I know. Keep up the good fight. We are always with you!

Just Live!

Never give up!